This week, Sylvia at Faithful Mom of 9 invited me to guest post on her blog. Along with introducing myself and Alyssa, I also reflected on how I am learning how little I actually know as a result of writing for my blog. Perhaps you can relate to not knowing some of these things… and if you happen to have some answers, I would love to learn!  Here is an excerpt from the guest post on Sylvia’s blog.

If there is one more thing I could share about me, it would be a lesson I have been learning the last few weeks. That lesson is how much I need help. And how much I would love to learn from all of you.

You see, I am most definitely not an expert.

IMG_0618This is a picture of Alyssa with me in the corner, looking rather confused–don’t you think? 

I knew this before… but as I have been writing more recently, I think I’ve proven it to myself. I don’t know all the answers. I don’t even know a few. I haven’t raised a special needs child. I don’t know why some of my siblings respond radically differently than I have to having a special needs sister. I don’t know what parents need to help their other children. I don’t know how to answer the questions adult siblings have about long-term care and legal matters.

There is a great deal that I do not know.

But there are a few things that I do have. I have questions. I have first-hand experience (such as it is). And I have a desire to learn and to share what I have learned with others.

For example, here are just a few of my questions…

  • Why do my siblings seem to have a harder time with a special needs sister than I had?
  • What do siblings of special needs people really need the world to know?
  • How can parents and older siblings let the other “normal” children know they are just as important and part of life, even if the attention seems disproportionate?
  • If Alyssa takes a job, how does that impact her Social Security benefits?
  • Why are doctors so difficult to deal with?
  • Does signing her up for Medicare mean she gets kicked off my dad’s insurance?
  • What do I need to know now to be able to someday handle my sister’s long-term care?
  • How long will I have to go to doctor appointments until I really understand my sister’s condition?
  • What will it look like to care for a special needs adult when I have a family of my own?

As you can see, these aren’t exactly easy questions. And as I said, I don’t have many (or any!) of the answers.

But read more here to discover a few things I do know!